2018 Started Rough

Wasn't he adorable. Kenneth Katterhenry. My favorite uncle/father figure. The last building block of my childhood died in the middle of January of 2018. He has always been my rock. This is his graduation picture. I told him he must have had all the girls chasing after him, but he only wanted one. My favorite Aunt. Convenient isn't it. She passed on the same year as Bob's Mom, both being mother figures to me as my Mother passed on in 1998. I don't think anyone knew just what Uncle Kenny and Aunt Mary meant to Bob and me. Bob never had the same kind of relationship with his uncles like he had with my Uncle and he never had true Aunts like my Aunt Mary. Well truthfully, there never was an aunt like Aunt Mary. I look like her. I always told them they just wanted to raise boys, so when they had me they just handed me over to my Mom and Dad to raise. They always laughed because there is no way that was true. I was born a year before they were married. Whenever, I would say that they always laughed. 

His death devastated me. Even as I write this tears roll down my face. He was a gentle man. Slow to anger. Iron fisted, but fair in discipline. He never played favorites. Whenever I would go spend the night I would purposely forget my pjs so that I could wear one of his T-shirts for jami's. He always thought that was funny.

He was a farmer by trade and never seemed to have a bad year. My Dad always said, 'It is a drought on everyone's farm but Kenny's' I asked him one time if he ever took out crop insurance and he laughed. He said only one year. He said that God put it on his heart that he should buy it that year and so he did. He needed it. He never bought it any other year and he never needed it. I thought it was amazing.

We talked so much. We would read books and discuss them. Oh I miss that man. A great corner stone of my life gone forever. But he tell me once, if you ever need a hug, close you eyes, cross your arms and give yourself a great big hug. That hug is from me.

His 3 sons were my brothers as we were growing up, but that day I lost the three of them too and one of thier sons who was like a son to me because of some stupid lies that my family should have recognized as lies. The lies came from known liars. I only found out about it 2 weeks ago, but even my son has known about it for months and did not say a word to me about it. These lies have been fermenting for 6 months, so anything I say now is not believed. Me, who is incapable of lying, is not believed of telling the truth by my family who has known me all their lives. Inconceivable. So, they don't want to even talk about it.

Then at the same time, my husband and I became estranged from my son and our Grandchildren, I will not go into the long story because it is entirely too upsetting. Suffice it to say that we have not seen our Grandchildren since Christmas and they are being told lies about us. We have talked to and seen our son only rarely and we have to be very careful what we say. It is like walking on eggshells. We have to make the connection. He never tries to make an attempt.

So, basically, on the day of my Uncle's funeral, I not only lost my beloved Uncle, and a security I have known for 64 years, but I lost a third of my family and my son and Grandchildren.

We also lost our Health Insurance so I couldn't go to see a psychologist. Shall we say I went into a deep dark hole of depression! 1/3 of my support group was missing and no one was checking on me. It was up to my loving husband and my wonderful daughter who lives 2,500 miles away to watch over me. It has been awful.

Then I finally crashed in May. The last rung in ladder before I hit the bottom of the pit cracked and broke in May. Fortunately, my new insurance kicked in the next day and so I called the psychologist and said I was in crisis and they got me in the same day.

I am happy to report that after her first visit things started to turn around and now as of todays date, I am definitely more than halfway back up the ladder and can see the top of the hole and sunlight again.

I am laughing again. There is sunshine in my life again and the world looks much brighter. Major Depression is a very scary place to be, especially when you support system deserts you in your hour of need. But there is always hope.

The one thing I always have on my side is God. He never leaves my side! He is always there listening to me when I talk and I think this time the ancestors were trying to help too, lol. I certainly have been hearing a lot of fiddle playing. I wonder just who played the fiddle. I need to investigate that.

Well, one of my best friends is getting married on July 28 and I am so excited for her! She had decided she would never get married and, of course, that is always when it happens. Now she is panic mode. Our Aimee and our Robbie are coming home because they are both in the wedding. Aimee and I just happen to share the same best friend. Isn't that the coolest thing! Robbie is going to be the ring bearer for his 'Auntie'. I don't think I will be able to keep the tears from flowing, happy tears for our Jen.

We are so excited to have our Aimee and Robbie home for 2 wonderful weeks. I can hardly hold it in. Then on top of that we are going to celebrate our Robbie's 6th birthday while he is here. So much fun! Plus while they are here, my brother and his wife, more like a sister, are going to be here too. It is going to be like a party! The time is going to go so fast! But I am going to such wonderful memories to hold in my heart. Oh I can hardly wait! Just 9 more days!

The first half of the year was absolutely horrible! However, I have learned a lot about myself and a lot about family. And I am much stronger for having lived through this emotional disaster. I hope to not have to live through it again!

I turn 65 in October this year. I think I should be done with emotional disasters of this kind! I'm probably dreaming, lol.

We shall see what the next half of the year brings. Oh what I didn't tell you is that I finally turned my RSD/CRPS From a Patient's Perspective book into a publisher. I have been too frightened to get it published, but the final edit is done. I should hear this week what happens next. The cover is complete front and back. I almost cried when I read what they wrote on the back cover of the book. They seem to think I'm really something and that the book needs to be read by everyone! I'll let everyone know when it is ready.

Well, to be continued as they say .....


July 8, 2018

For the last few days, I have been working hard getting people information about the Work From Home Opportunity. There has been a lot of interest. I'm excited that I can offer this to my Fibromyalgia people because it is truly something that can work for them if they just take this first step. Plus, if they take the chance  on letting the nutrition benefits of Limu Moui Original have a chance for their body's to absorb the nutrients, I would love to see what they discover. It has been fun.

My stress levels remain high, but my migraine is much better. There are times when it tries to reappear, but God has given me the tools I need to take care of that. I am so blessed that with everything that is wrong with me, I have so little pain and what I do have, I know what I need to do to relieve it almost immediately. God has been so good to me.

We actually got some pictures hung up in the Farmhouse today. The first actual decoration since we started the rehabilitation of this 161 year old Farmhouse. I love this old place. Last night, I know this is going to sound strange, but I swear there were a lot of people here when I went to bed. There was talking and singing and some fiddle playing. Of course, where our bedroom is, was completely outside underneath big trees at that time when they were alive and the weather was beautiful. Sometimes when the ancestors show up, they always play the fiddle and there is always loud talking and singing. Last night they were really loud. It was hard to sleep until after 4am when they finally quieted down.

Thankfully, I've never seen them. I think that would freak me out completely. I love hearing them though and I love smelling the cooking they do, if only I could actually eat the food I smell!

This house is so much fun!

June 9 2018

Today was the day I do the Radio Show, Lives Changed. I never get any feedback from anyone, so I never know how people like or don't like the show. I just keep plugging away, talking to the tree outside the window and it keeps bobbing its branches up and down like it is listening and approving of what I am saying. In the summer it looks so happy with it leaves out and so pretty. In the winter, it looks so sad and lonely. We had such a warm winter, it started to bud out and I was afraid we would lose it, but here it is in all its majestic beauty.

I love being out in the country with the big old trees and my big windows that let the sun through so that I get light. In our other house, we had big windows and I felt like I lived in the woods with Snow White. We had all the animals passing through and it was beautiful, but unless I went outside there was no sunlight because sun could not reach inside the house. It was a beautiful house and I loved every inch of it and the woods, but it was a depressing house too because there was no sun. When you have chronic depression you need the sun.

After the program today, I wrote some for next week's show. I was given inspiration over night for an article for next week. It happens like that a lot. I will go to bed and pray for inspiration and before I am done with prayers, another article will appear in my head. It is funny how that works, not funny haha but strange. I love it though and it certainly helpful.

Then, usually I have to take a nap on Saturday's because I have to get up so early for the radio show. I really love doing the radio show and hope it is helping people. I would hate to think that no one was getting anything out of it.

Then, late yesterday I got a call from Book Writing, Inc to approve the final copy of the book, but when I looked at it again it was the unfixed copy of the audible version of the book. The same version they sent me before, so I sent it to them again and asked why they keep sending me a version of the audible copy that has not been fixed? So frustrating! So, another week passes. Oh well, maybe next week it will finally be done. I hope so! I have finished editing everything, the book cover is finished and I love it! Well, 'til next time Diary.

My Diary

Today is my first post in My Diary. Today I discovered that people who should have known better, who have known me all of their lives, people who I have saved from disaster over and over again, people who know me inside and out, believed an impossible lie about me. Just a ridiculous lie that no one who knew me would believe of me. Yet they did. Every single one of them. The thing is, it is family and the other thing is, that it is family that was spreading the lie. Then, because of an awful personal family situation that no one wants to understand, listen to or get in the middle of, one member of the family decided to make a phone call and make things worse, then said he didn't want any part of it. It is amazing to me how family who is supposed to be there to support you, can stab you in the back, especially when times are bad. Now 5 months later, when I try to find out why everyone is quiet and treating me like I don't exist, I discover what happened. Not one person faced me with it at the time, but believed these lies about me and all turned their backs on me when I needed them the most. Well, it is one thing to have your so-called friends treat you this way. Family is something else. 

That is why when you have a chronic illness, support groups are so important. We can't always count on our blood relatives to be the families we trust them to be. The support groups we choose however, we can choose carefully can become the loving family we need who will give us the love and support we so badly crave. 

How To Start A Support Group

How to Start a Support Group:

To Advertise For Free:

  • On Facebook, just start talking on your homepage that you are starting a local Fibromyalgia Support Group.
  • Call all the local churches and ask them to put the notification in their bulletins.
  • Put Notifications on Free Bulletin Boards in town.
  • Write Editorials for your local Newspapers every week.

Where to Hold the Meeting

  • At your home.
  • At your church.
  • At a restaurant that will let you hold it for free.
  • At a hospital that will let you hold it for free.
  • At a Clinic that will let you hold it for free.

What to use for material:

  • Any materials used from the Radio Show, the Webpage, or the Support Group are copyrighted, so be sure that you have the source of the material on anything you hand out. Do NOT use names from the Support Group in your local support Groups.
  • Subjects from my radio station.
  • Subjects from my webpage.
  • Subjects from the Support Group Pages.
  • You will never run out of material. If people ask questions you don’t have answers for, just write them down and tell them you will have answers for them the next time you meet. Then, message me on Your Fibromyalgia on Facebook and I will be more than happy to help you with answers.

Once you have your support group started, try to find someone who will help you with the support group. Someone who will help you run it, a co-director. Make sure everyone knows you are not a Doctor or in the medical profession at all and do not give medical advice.

I can provide you with a privacy policy. And you need everyone to sign a privacy policy so that everyone knows that they do not talk about anything that is said inside the group.

You need to set rules. Look at the rules for Your Fibromyalgia. Those should be good enough.

If you start a local support group, let us know and we will start listing local support groups on the webpage.

Walking Through The Wilderness

Wilderness
Written by Deb Lundquist
February 24, 2017

As you all know, I often talk about my faith because it is part of how I get through this path we are all walking together. I know that not all of you have the same faith as I, or any faith at all, but just bear with me and see if it helps in anyway.

I often listen to Discovering the Jewish Jesus on the DayStar television channel. Rabbi K. A. Schneider, who is a Jew who believes that Jesus is the Messiah, has done several series that he has done, and I never know which one I am going to be listening to as I tape his shows. Several times he has talked about how we often walk through wildernesses in our lives and that during those times we need to lean on God all the more to get through them because that God often teaches us things during those times, things about ourselves, about Him, or things about others or situations.

I have been thinking about that a lot since I started to listen to those broadcasts and I have come the conclusion that I have been walking in a wilderness since my accident in 1999. I have had some real moments of insight about my relationship with the Lord, my illnesses and why I have them, which is why I have the support group, the webpage, and now this radio show.

All my life, I have been in the medical field in some way, either as a patient, a medical transcriber, a medical bill/insurance provider, or advocate for the patient to get their bills paid. I was a sickly child and learned early about doctor’s, illnesses, and medications. I was a medical advocate for my first father-in-law at the young age of 17 when his family didn't know, when he developed cancer.  Then our daughter starting at the age of 5 when we discovered she had been having bladder infections from the time she was conceived. By the time she had her surgery at 10, I knew as much about urology as a urologist and was even asked if I was one. By the age of 22, I already had raging endometriosis and had my miscarriage of my first child. I could have been a doctor by the end of that episode at the age of 29. I could have been a doctor the way I remember all things medical that I am told and have often been asked by doctors and nurses if I am.

Unfortunately, or maybe fortunately, who knows, I understand all about the muscles, ligaments, tendons, fascia, nerves, and I can feel what each is doing in my body. It angers me when a doctor tries to explain things to me because I already know. I always say, ‘yes, yes, I already know that, let’s get on with things.’ Or I will say, ‘no, you have that backwards, this is the true way of things.’ They really hate that. Like the doctor who told me if RSD/CRPS moved to more than one limb it was really Fibromyalgia. Yea, that was a funny one. I actually laughed and then educated her.

When I got Fibromyalgia, God told me to be an educator for Fibromyalgia. That is what I have tried to do, once I figured what to do for myself.

So, anyway, back to the subject at hand, I started thinking about what Rabbi Schneider said about walking in wildernesses in our lives. Now if you remember anything about the Bible, the Jews escaped from Egypt and walked in the Wilderness for 40 years before they were allowed to cross into the land of Israel. According to the Rabbi, this was so that God to teach them many lessons and it took 40 years for these lessons to be taught because they were a stubborn people.

Now, I don’t know about you, but I know I am stubborn, lol. I also know that I have asked God to stop hitting me over the head with a 4 x 4 when he wants to teach me something because I’m being dense! I figure my accident in 1999 was a huge 4 x 4! However, I survived it only by the Grace of God! Everyone said I should have died, all the emergency people that is. God wanted me to teach.

Even as healthy people, I think we walk through our wilderness phases, I have given a lot of thought to this over the last few weeks. When I was first married, was a huge wilderness phase for me. And yet, now that I am over all the abuse stuff, I can look back and see sometimes of laughter and happiness, sometimes of fun and joy.

Since 1999, I have been walking through another wilderness, with oases in between each wilderness period. For 4 and a half years, the wilderness was very dark and dank, and I don’t even like to think about that time. That was the time of completely uncontrolled RSD/CRPS with pain levels so off the pain scale chart as to make it obsolete. Still during that time, I did go to Washington, DC to advocate for RSD/CRPS. I think about it now and wonder how I ever managed it. I could only have done that with the help of God. I sure couldn’t had done that on my own! That wilderness time was long, hard, and so frightening. We were completely financially dependent on our daughter who was only 18 at the beginning. Incredible, but that was also the time when God would take me down stairs at night to write the most incredible poems like ‘Living with Strife’, ‘If You Were Me’, and other poems about learning how to live with illness through faith.

Then, I had a 7-year Oasis, no pain. Then, on and off again wilderness’ and oases and that last few years have gone by and I have survived each one. With each wilderness, I come out having learned something new about myself and my faith has always grown stronger, because I never, ever give up on God. I just don’t know where I would be if I didn’t have faith. Honestly, I probably wouldn’t be here.

As I have been searching in my mind what the Rabbi has been discussing, I have come to the realization that we each walk through our own wildernesses differently.  We all handle them in completely unique manners, just like we are unique in ourselves, but still in the end we learn different things. With Chronic Illness, we will never be cured, but there will be times when the wilderness will have an Oasis here and there. If we don’t take what we have learned during our wilderness walk and use it, we will take that path again until we take that knowledge that we learned and apply it to our lives.

I have just gone through another wilderness. They are rough, but we can get through them, especially if we do not turn our back on our faith. If we share that we are in a wilderness so that we are not walking through them alone, we can get past them a little easier. We all go through them. Just as we aren't alone in our Fibromyalgia, we don't have to be alone as we walk through our wildernesses either. So, let someone know if you are going through one. Let our support group, Your Fibromyalgia, know so that we can help you walk through yours as well.

Wildernesses can be dark, lonely and frightening places. Don't walk yours by yourself. We can get past them, but they can be very hard to get past if you try to do it by yourself.  I know, I just tried. Then, my Bob and God stepped in and stopped it.

My wish for you is peace within your pain-wracked bodies, that your stresses be lifted up and off your shoulders and that your wilderness should be turned into a beautiful oasis from this moment on. May God Bless you!

Thanks To Caregivers

Now for Caregivers
(Taken From 2/19/18 Lives Changed Radio Show)
Written by Deb Lundquist

February 17, 2018

Thank you from the bottom of our hearts. Thank you for being there for us every day of our lives. We may not say it often enough, but not only do we appreciate you, but we love you and we need you more than you will ever know!

We know that you don’t really understand what is happening to our body’s. Shoot, we don’t either. Every day, it seems like something new is happening to our body’s. We are afraid and we don’t want you to know just how afraid we are. We have anxiety disorder because we are afraid and we know that we drive you crazy with that and sometimes our OCD gets out of control because we don’t have the energy to straighten things up, so we want things just so. We don’t do things just to upset you.

We know that you don’t get any support, even less support than we do. People don’t understand what you go through any more than they understand what we do. They don’t understand the worry you suffer because they don’t understand your life either. They don’t understand that when our lives turned upside down, yours turned upside down too.

Let me, as a patient, give you some ideas that my husband and I have put together to help both of us, patients and caregivers.

Caregivers:

Although you do need to be home more often than not, still you need to take care of yourselves. If you don’t take care of your physical and mental health as well as ours, you will soon find yourself going down the rabbit hole.

  • In order to do this, you need to make sure you are taking good natural nutrients as well your Fibro person.
  • Make sure you go to the Doctor if you need to go. Stay away from sick people, not just for yourself, but your Fibro person is not more susceptible if you bring something home.
  • You also tend to lose friends, so try to maintain some social interactions, remembering that you need to be just a phone call away if help is needed. Bob goes to church even though I can’t always go.
  • You need to be continuing to do things you find enjoyable. For instance, my husband goes to auctions with his brother. He goes to sales with him as well. He also loves to mow the lawn, we have 3 acres, where he can have his one-on-one time with God. He loves to play his games on the computer, plus he researches things on the computer, as well. He keeps busy working on the house and is always looking for excuses to go on a road trip. He is working part-time and making new friendships that way as well, he is retired.
  • Keep your spirts up and stay emotionally well-balanced. If you need help with this, be sure to get it! This is important for you and your family, just as it is important that your Fibro person do the same.
  • Spend time together doing things you both like so that your relationship stays strong. You don’t always have to be a caregiver, but friends, a couple, whatever. You can go out to eat, see a movie or take a drive. Just as long as you are doing something you both enjoy together, that is what is important.
  • Remember, you were friends, a couple or whatever first and that should always be worked on together by both of you to stay strong through all of this for it to work.

Now for the patient:

The patient’s needs will vary from day to day, unfortunately. Sometimes all we need is to sleep. It just depends on the weather, our stress, or our disease and how it is behaving on any single day.

We need you to make the kitchen an easy and safe place for us to use. Meals safe and easy to make, or even better already made so that all we have to made so that all we have to do is microwave them.

We need our living space to be made easy and safe places to access with internet access and with ready phone access. Our lives are mainly based on the internet. That is where we do most of our socializing.

Try to get our friends to come to our house to socialize with us there, so that we can keep our friendships. Maybe see if our church will do Bible studies and fellowship at our house, because it is so hard for us to leave our house. Little things like that would mean so much to us.

It is hard for us to clean our house, although we sit and see the mess. If you can see that it is bothering us, maybe you can see if someone can clean the house for us.

We love conversation, games, people. So, if you can see that we can get people involved with us we would love it.

Anyway, with all this said, we love everything that you do for us, but we want you to take care of yourselves too. We want to stay with us and not desert us, so please, we love you, don’t get burnt out by taking care of us and only us. Try to understand what we are going through. Talk to us and make sure our communication is open because that is key to all of this.

Please remember that you are very important to us and we love you!

For Families of Fibromyalgia Patients

For Family of People with Fibromyalgia or Chronic Pain
(Taken From Lives Changed Radio Show - February 19, 2018)
Written by Deb Lundquist

February 17, 2018

It is hard for me to talk to family members because so many desert those who have chronic pain. I really hope if you are listening, you are not one of them. If you are, then let me have a few words with you first.

If you were listening to my discussion to those who do not believe, then I do not need to rehash how this syndrome feels. Let me instead, tell you what it is, or rather what we know so far because researchers don’t have concrete evidence to this day what exactly what Fibromyalgia is. This is why doctors can’t treat it well, put it in remission and to this day there is no cure for Fibromyalgia.

Let me repeat that for everyone. With emphasis. There is no cure for Fibromyalgia because research at this point has not come to a definite reason why we develop it, how we what it is, and therefore how to treat it, let alone cure it.

Do you understand this? Now?

Let me tell you what we know at this this point. When I say we know, it is in parenthesis.

  • A compromised Central Nervous System that has malfunctioning fright or flight response which is in the Sympathetic Nervous System. The switch is stuck in the on position, which means that our bodies are constantly in the alarm state of functioning and never in the relaxed, status quo, all is well state. Therefore, the hormones that the body makes during the danger cycle are constantly being made and not allowing other hormones to be made. This then, in turn, causes us to have  hormone imbalances which throws our whole body out of control. Sometimes, this will take a short time and sometimes it will happen quickly. Once the body has a compromised nervous system, it only makes sense that the other nervous systems will come into play at some point in time since they are all interrelated. I do not believe there is research to back up my statement.

  • Our Adrenal Glands start to become fatigued at some time in the process, causing us to become even sicker. Our attitude plays a large part here.

  • It is not an auto-immune disease, although there are some who say it might be. It sure acts like one. It does like to hang around with auto-immune diseases however.

  • A person develops myofascial pain syndrome with this because it tends to affect the muscles and they are wrapped and intertwined with myofascia. I will explain this later as well.

  • It starts out feeling like the flu, but if it lasts for more than 3 months then it needs to be investigated more intensely. It is intense pain like a person has never felt before, complete and utter exhaustion, brain fog, insomnia, confusion, memory loss, loss of concentration, loss of stamina, loss of sex drive, difficulty having sex, sensitivity to touch, and over sensitivity of all of the senses. This is because chemicals change in two different sections in our brain. The feeling of bugs crawling on one and intense itching everywhere. Plus a whole lot more…..

  • It seems to affect more women than men, but that ratio is starting to change.

  • It does happen to children and teens as well. Although, they have a harder time getting diagnosed and treated.

  • It affects 2-5% of people in the USA alone, although that number is probably higher because that number does not include children, teens, the misdiagnosed, or the under-diagnosed. The number can reach up to 20 million worldwide. We are not alone.

  • Many of the military returning home with PTSD are being diagnosed with Fibromyalgia.

  • It mimics many other diseases, so they must be ruled out before this diagnosis is given.

  • A person will often already have an auto-immune disease like thyroid disease or Diabetes 2 before they develop Fibromyalgia, or they will develop one shortly afterwards. Fibromyalgia is seldom a stand-alone illness.

  • Abuse past or present may be a factor in the development of this syndrome.

  • Many people with Fibromyalgia will develop Celiac Disease or an intolerance to Gluten.

  • We start to become malnourished and can develop leaky gut syndrome.

  • We have compromised immune systems.

  • The list continues.

What is Fibromyalgia? It is very real! It is not a figment of our imagination! We cannot wish it away, because boy oh boy, believe me, if we could, it would already be gone.

We are not lazy. As a matter of fact, most of us are Type A personalities and Type A personalities cannot be lazy. It is not in our personalities!

We want to work! We do not want to be on disability and, as a matter of fact for us, disability is a last resort! We want to be income earners for our families. We want to be active members of our families. We do not want to drop out of our lives or society. Most of us are people-persons and so isolation is like a prison to us! A prison that this illness has made for us, not one we made for ourselves. We did not ask for this disease or this isolation and we really need people to realize that and help us, not ignore us. We did not create this disease. We did not imagine this disease. Please do not abandon us!

We are unable to do the things we could do before we got sick. We cannot cook, do the dishes, clean our house, do the laundry. Often, going to the grocery store is torture to us because picking up groceries is heavy. Think about it. Every muscle in our body hurts now in a way a healthy person cannot imagine and has never experienced.

We do not want to be on drugs. We hate drugs and how they make us feel and yet without the drugs, we would find life totally unlivable. Many of us are trying to go holistic and try all natural ways of taking care of ourselves, but many of us have very painful diseases on top of Fibromyalgia that make it impossible and we need to use medications. Do not judge us. Number one, you are not living in our body’s. You are not living with our pain and therefore cannot possibly understand how we exist day to day. Number two, you need to learn what Fibromyalgia really is and by learning what it is, you need to understand it.

Do not tell us we do not look sick. How do you expect pain to look? How do you expect itching, confusion, lack of concentration, total loss of control of all of our senses to look? Can you answer that? Have you looked in our eyes? Can you see the exhaustion in our eyes? Do not ask us how we feel? We feel terrible. Ask us what you can do for us.

Do not tell us that we need to get a job. If we could, don’t you think we would be working? This is frustration speaking and that too is real and it is from each and every Fibromyalgia patient. Frustration with friends and family who do not understand and yet feel they have a right not only to judge us, but tell us how to live our lives.

It isn’t that we do not want to do these things. We can’t! Can you imagine only being able to clean a room a day and the whole time you are cleaning it you are crying from the pain? The next day, you are in bed because you are suffering so badly from the cleaning of the previous day? This is the life many of us live.

This is Fibromyalgia.

To Unbelievers

TO THOSE WHO DISBELIEVE
Written by Deb Lundquist
February 13, 2018

This is for those of you who DISBELIEVE that FIBROMYALGIA is REAL.

This is for those of you who believe that your loved one, friend, or patient is lying.

Here is a question for you and I want you to answer it truthfully.

Have you ever felt pain? I mean REAL pain? Do you even know what REAL pain even feels like? Pain so intense that it consumes your every thought? Pain so intense that it sharpens every single one of your senses to the point that even the slightest touch of your clothing increases your pain level?

I would suggest that if you are doubting your loved one, that you have never felt pain.

Did you know that Fibromyalgia has a medical code for a diagnosis for insurance?

Did you know that our Military men and women, our Heroes are coming home with Fibromyalgia? Are you going to call our Military Heroes liars too? Really?

Let me ask you another question. I want you to answer it truthfully too.

Have you ever had the flu so bad that you felt like you were going to die? The flu where your entire body ached from the top of your head to the tip of your toes, even your hair? You were nauseated but you never vomited, your stomach cramped but you never went to the bathroom? All you could do is stay in bed and moan and groan. Maybe you even had a headache with it and nothing that you took made you feel any better?

When you felt this way, could you have driven, gone to work, cooked, stood and done the dishes, gone to the grocery store or done any errands?

Well, guess what. That is what Fibromyalgia feels like in the beginning 3 months and it just gets worse as time continues.

You are fortunate if you have never felt pain. Your nonbelief is unfortunate because it makes you a very un-empathetic person. Can you believe that of yourself? That you can’t have empathy for someone who is in need. That you cannot have faith in someone you have known for so long and you can turn on them when they are telling you the truth about a disease that is invisible. Do you realize that you have to face a truth about yourself, a very ugly truth?

Fibromyalgia is very REAL and is invisible to the unobservant beholder, but if you look in their eyes you can see it. If the patient cancels something, it isn’t time to get angry. It is time to check on them. Depression and Isolation are very real dangers to the Fibromyalgia patient. If you used to care for this person, it is time to check on them and not just by phone, but in person. Make sure they have what they need.

It is not time to criticize. If they aren’t working, it is because they can’t do it anymore. They aren’t lazy. They would love to work. They may not be eating right because cooking and going to the grocery store is just too much too handle.

Finances may be so tight that they are having to choose between food and medicine. If you were in their position, which would you choose?

Suicides are increasing because patients can’t get the medications they need and disbelievers have walked away from them. Do you count yourself as one? Do you?

Fibromyalgia is REAL!!!! It is time for you to believe.

Read! Learn! Don't be part of the problem!

CLICK BELOW TO START TO LEARN!

How To Treat Fibromyalgia

Hi everyone. I am going to write something that some people are not going to like, but it is the truth and only the truth. This may sound like a lecture, but it is just how I write. It is not a lecture, but is how to take care of yourself and a way to improve your Fibromyalgia, but only if you follow the steps laid out for you.

This is how you treat Fibromyalgia. No I am not a Doctor, nor am I in the medical field in any way, but for 18 plus years and as a Researcher in my past life as my husband has been a research for over 30 years, and as an author, I feel that I have figured out what to do.

First, don't count on your Doctors to fix your Fibromyalgia or all of your diseases. Why? Well in the case of Fibromyalgia, they don't know what it is, so how do they know how to treat it? Between you and me and the listening ears of the internet, I think Fibromyalgia is a combination of several diseases, plus Celiac Disease, nutrient non absorption, plus nutrient deficiency which is easily fixed. All 3, Celiac Disease, malnutrition and nutrient non absorption are all easily fixed. The others can also be somewhat fixed or helped by adding nutrition to your body. All of our nutrients are stolen daily from our diseases and if they are not replaced daily, we will only get worse. Not one vitamin at a time, but all the nutrients because if you do one vitamin at a time you are not getting the micros and they are just as important.

You don't want to hear this, but you must, no matter how much it hurts, you have to move, not just move, you have to do light exercises, stretches. If not, you will be a cripple. Is that the life you choose for yourself? Is It? Really? Because this is your choice!! Yes, it is going to hurt! Tough. Do it anyway. It is going to hurt worse if you don't. The more you sit or lay down, the more you are going to hurt. So get up and move. You can hate me for saying it, but your Dr. says it too. They may not know what they are doing, but in this, they are right. If you don't move, you will develop scars within your muscles and those are hard and painful to break up once they develop. I know. I was bed bound for 4.5 years and I had to break those up. So get up off your bed, couch or chair and start moving.

You have to change your attitude. You cannot for the rest of your life say, oh poor pitiful me, I live in pain all my live, I am tired all the time, I can't think therefore I can't do anything, I have brain fog so I can't do anything. I have no stamina so I can't do anything. Wrong! First, you have to start thinking positive. Are you going to let this disease completely ruin your life or are you going to stand up and pull up your boot straps and figure out how to live with it. I for one decided I was going to learn how to live with it. When I finally walked out of my bedroom and saw my house, it was like the first time I had seen my house. At that point, I decided it was time I learned how to live again because I had a whole house I wasn't even using and it was a big house. That is when I started physical therapy and massage therapy.

You have a decision to make. Am I going to whine and complain for the rest of my life. Am I going to blame others for the rest of my life for being alone. Did they leave me because they didn't believe in Fibromyalgia or did they leave me because I whined and complained all the time about Fibromyalgia and didn't care to talk about anything else but Fibromyalgia? You need to do some real soul searching and figure out are you a constant complainer who cannot move forward? Are you a constant whiner who cannot find interest in anyone else's life? Be honest with yourself. Is that why no one wants to be around you? Do you talk to the people you love about their lives? Do you ask them how their day went? Do you ask them questions about their lives? Or as soon as they walk in the door do you start demanding their attention and start demanding help with no thought to what their needs might be at that moment when they walk in the door? Have you tried to contact your family without talking about your Fibromyalgia? Or is that absolutely all you can think and talk about? If so, then you really do have a problem because you really are shoving people away. Most people are not going to stick around if that is all you are going to talk about and people are going to leave if all you do is whine and complain and blame everyone else for your problems.

You have a decision to make. If you want to get better, you cannot count on your Doctor to do it for you. Most of the medications they are going to give you can be beneficial, they are also toxic. Some of those medications can also do damage to your body which is why before taking them you must do research on them so that you know what all the side effects are and if you take them how long you should take them before they become a problem.

Pain medications can actually create rebound pain if you are on them long enough. Advil or its generics are bad for your liver, so you need to be aware of that. Tylenol and its generics are bad for your kidneys and so you need to be aware of that.

You have to be your own Advocate and YOU have to decide how YOU are going to take care of yourself. First, you do need to get a diagnosis and usually a Rheumatologist is the one who will do it. However, you do need the battery of tests to make sure everything else is ruled out. But like I said, medications can only go so far. The rest is up to you. If you think medications are going to fix you, you are going to not only be disappointed in your Dr. you are going to be angry. It is not the Drs fault. It is your expectations. You do not have to always fill your Drs. prescriptions if you are uncomfortable with what he/she has prescribed. Talk it over with your Pharmacist.

Your Dr. is not a magician. Do not expect magic from him. Plus his hands are now tied as far as pain medications are concerned, so getting mad at him is fruitless and only makes your pain worse. This is something you have to get over.

You may not be able to do all of these, but do as many as you can.

1. Start moving, yoga, this isn't if you want to. This is a MUST.
2. Get massages, there are several kinds, make sure they are using essential oils for pain and so they can touch you. If they are massaging you too hard, tell them. It is going to hurt afterwards, but that is natural. Even healthy people feel that. Your body is not used to that. Toughen up and continue to go back until the pain stops. Make sure the massage therapist knows that the last massage made you sore for how many days.
3. learn how to meditate, go to your happy place
4. acupuncture
5. essential oils, you can contact me or someone else
6. herbs, I don't sell these, but there are others that do
7. fucoidan, you can contact me about this
8. change your diet, this is huge! Fodmap Diet
9. stop drinking soda/pop
10. quit drinking or using anything with caffeine!
11. stop using or drinking anything with artificial sweetners
12. lower your sugar and carbohydrate intake
13. drink more water, take your weight divide it in half and drink that in ounces to get rid of toxins
14. stop eating prepared foods
15. Go Gluten Free
16. No more Fast Food
17. No more Nightshade Foods, potatoes, tomatoes, etc
18. get adequate REM sleep
19. get away from negative abuse people, situations
20. reduce your stress.
21. stop smoking
22. stop drinking alcohol
23. start being active in your community

These are musts if you want to get better. You have to get out of your self pity, your always thinking about your pain. You need to start thinking about all the positive things that you used to be able to do and start thinking about how you could start implementing some of those things at home. Because you aren't dead. You are still a viable person who still has a purpose in life. You just have to choose if you want to live a life with purpose or if you want to stay in your self-pitying world. You are an unique person and there is no one else like you in the world. You have skills no one else has! They may be rusty right now, but they are still there. Look at me! I came from being bedridden, crippled, in a wheelchair, pain a 10+, crying all the time. Thinking only of my pain and why no one wanted to be with me. Now I run this support group, I have a website, I sell 2 products which have gotten me out of bed with no pain and no symptoms and I have an online radio program on the BBM Global Network and TuneIn Radio and in January iTunes. I never had these skills or experiences before these diseases. Look at me now. I decided to live. I am out of a wheel chair and don't even use a cane! Now, how about you. Which do you choose? To live a life or to wallow in self pity? You are all beautiful/handsome people, you are all important, you are all loving individuals and I am not trying to lecture you although it may sound like it. I am trying to help you. It is my calling, my purpose since I figured it out. When I was diagnosed with Fibro God told me to EDUCATE. And I have with articles and with things I have written, this is the first time, I have actually given people a swift kick in the butt, but I know you can do this. Too many are depending on miracles Drs. can't give and then are angry and discouraged. I know you have it in you to fight. I know you have the strength to continue! I know you are winners and I love you all to the moon and back. - Deb

Two Ways I Handle My Pain

And Now We Are In 2017

Two weeks later, I was up and moving, picking things up and putting things away. Walking around, going to exercises and lasting longer than usual, my hip was feeling the stretching and was feeling stronger and then...two weeks later I woke up and laid perfectly still in bed afraid to move.

There I was, laying in bed and I virtually had no pain, my brain had no fog and I felt like jumping out of bed and racing around the house. I was afraid to move and break the spell.

Slowly I got out of bed, I was okay. Went to the bathroom and got ready for the day. Still okay.  So I headed towards the rest of the house. Bob was in living room. He took one look at me and smiled.

'Well hello! Welcome home! You've been gone a long time! I'm really glad you are back! I've really missed you!' I said, 'I don't have any pain' dumbfounded. He said, 'I know I can see it in your eyes.' 'Bob, my head is completely clear!' He giggled, 'Yes, I know, I can see it in your eyes and the way you are standing!' 'Bob, I feel good!' He just hugged me! 

It still continues. I don't take naps like I did. All I want to do is write. Write. Write.

The things that I want to put down in print, I never knew I had it in me!

The Radio Show started and in less than 4 months, they renewed it for a year. I love doing it, it is fun and I feel like I am helping people. I hope when it is time for a year renewal, that they will renew it again....I feel we are just beginning to make a difference. People are noticing the show and I am getting noticed for it. People are asking me to write articles and such. It is exciting.

The more Limu I drink, the longer I drink it the better I feel. I still am using my doTERRA, I love my oils and I love Limu! The best 2 products there are I believe. Do I believe in miracles? Of course. Do I believe in good nutrition? Well, what do you think? Your body is absolutely amazing. God made it that way! He made it so that, if given the right ingredients it can respond in the most wonderful ways. That is why you see so many people going all natural, GMO and other ways of eating these days. They are realizing that they have to get rid of toxins and start taking care of the only body that they will ever have if they are going to survive in this world. 

I am so happy that I listened to Will, started to feel better because I started to feed my body what it needed, started exercising, and started the Fodmap diet. With Limu, doTERRA, the Fodmap, exercise and a positive attitude, my life has turned around. I may not be the same person I was in 1999, but let's face it I am older now too. I wouldn't be anyway. However, I am now able to work at home. Could I work in the outside world? No, I doubt it, but I turn 65 this year anyway so who cares. I just am happy that I feel better than I have felt since my accident in 1999.

And I am proud of myself for having surviving everything I have been through to get to this point!

My story will continue as my life progresses.

2016 Arrives

Everything is in one room, except the bed. It is the breezeway between the house and the garage. It has been a month and a half since I broke my hip and ribs. Bob has me set up in a little corner so that I can 'work.' The table has the printer on it. The only decoration for Christmas is the Reindeer next to the printer. You can see my walker next to the empty red chair. I am not allowed to move unless I call Bob or my cousin. She and her daughter come and stay during the week to take care of me while Bob works on the house.

The living room, master bath and bedroom are still under construction. Vicky, Stormy and Bob tried to make the room as homey and natural as possible, since it was the only livable room. They could use the kitchen, bath and breezeway. He made the bathroom as accessible to me as possible, but it was awkward as could be and really hurt. It had a shower and we had a chair, but at first, sponge baths were all I could handle and those were with tears. Vicky and Stormy couldn't stand it, such soft hearts. They would put lotion on. So good with massages! 

It took 8 months before I could get off the pain medicines. Bob would write down the times on a wipe-off board and Vicky would go by that faithfully! I don't know what we would have done during that year without them! They made me laugh! They also are ones who find humor in life when there should be tears.

As the year went on, I continued with the webpage and added a couple of assistants because it was too much with a broken hip! I continued with my marketing classes because I was learning so much and at least I felt like I was doing something. I wasn't earning much money, although I did earn some. I think one week I actually earned $97, wow, but I spent a lot more money than that to earn it. Still I was excited to earn it. I wasn't very good at what I was doing and I was spending a lot of money we didn't have, but I felt like I was learning something that I could use later, as soon as I learned it!

Bob continued on the bedroom and the bathroom and the I started being more active on the support group, Your Fibromyalgia, LLC on Facebook. It was growing fast. I was contacted by 2 Who's Who groups and they wanted to do Videos of me and they wanted me to write articles for them. I was shocked and honored! I wrote the articles for both and did the videos. I was really nervous doing the video and ended up doing it in the 5th wheel in the fall.

When I got a call from CUTV for an interview, to say I was surprised is an understatement! I had never done one before and boy can you tell! It is awful! LOL. He said he had watched the video.

Then because of the CUTV interview, I got a call from Empire Radio and ended up doing 5 interviews with them, each one was a little better as I got more used to actually talking to people and being interviewed. It was amazing. None of the people I had ever talked to had ever heard of RSD/CRPS or Fibromyalgia and so explaining these to people in a half an hour seemed impossible.

BBM Global Network called me next. They left a message. They wanted me to do my own show for an hour on Fibromyalgia. I thought someone was pulling my leg, so I didn't call them back. I mean really, who on earth would want ME to do a radio show of my own! ME, Deb Lundquist! They called again and had to leave another message. Again, I didn't call them back. After the 3rd call, I decided I would nip this in the bud and I called them back.

When they answered, I said, 'Someone named Eddie keeps calling me.' 'Oh, I'm sorry, they are all in a production meeting. Can I leave a message?' Now, I'm thinking, see it's some kind of prank, there isn't any Eddie. 'Sure, this is Deb Lundquist and . ' 'Hold on, did you say Deb Lundquist?' 'uh, yeah...' 'oh they are gonna want to talk to you, hold on...they are going to be so excited it's you!' Now, I'm thinking, what?' Next I hear a lot of excited voices. 'Is this Deb Lundquist? The Deb Lundquist with Your Fibromyalgia?' 'uh, yes' Then a different voice 'oh, we have been trying to get a hold of you..' 'yes, how would you like to do your own show..' 'yes we are really..'

They just kept talking over each other. Three different voices so excited and I really couldn't take it all in. Finally, I interrupted them. 'Excuse me, you really want me to do an hour online radio show weekly on Fibromyalgia?' 'YES!!!!' 'When?' 'As soon as we can get you prepared!' 'You get to name it, write your own bio, create your own shows every week, everything. It's yours.' So, I mean when someone says this to you and they seam to be so excited, but they are in New York, what is the next thing you ask. 'Where would I do this?' 'In your own home.' 'Really? I mean is this for real?' They all laughed, 'Yes, it is for real and we are very excited! This show is very needed and your are the very person to do it!' 'Why me?' 'Because we have heard your interviews and you have a lot more to say!' 'Yes, I do. Okay, why not!'

That is how Lives Changed came to exist. It is fun and exciting and coming up with ideas every week is challenging, but the group and the Holy Spirit keep me going.

In November, there was a summit for the marketing group I was in, Greg Gomez, III and I wanted to go so badly, so Bob said okay. My hip still wasn't healed, but the Doctor said I could go. I didn't quite realize it, but I ended up being a speaker about how to grow a Facebook group, and Greg was so excited to discover I hand landed a Radio Show. None of his students had ever done that. 

Also, I met face to face someone who has turned into a great friend, Will Lince. One night during the Summit, he handed me a bottle of Limu and asked me to give it a try. I told him I would when I got home. I forgot about it for about a week until Will called and then I started drinking it, 2 oz twice a day.

Now you might ask, what is Limu and that is a good question. Limu is actually a seaweed extract that is mixed with mango juice, apple juice, pear juice and papaya juice. It has something in it called Fucoidan. It is actually a super powered nutritional drink and tastes like mango with a bit of pizzazz. It is not a medication and is not meant to replace a medication. However, within a week of drinking just 2 oz twice a day, I had a very gentle cleansing of my body which I badly, oh so badly needed. I was so constipated. TMI?

A week later, I not only ordered a case, but I became a promoter. I increased how much I was drinking to 4 oz twice a day and started noticing a slow change in my body. I stopped taking the doTERRA supplements because they were really irritating my stomach for some reason. (I now know from an endoscopy that I had a very irritated opening at the top of my stomach with a small hiatal hernia which has now healed. Not with medication. I actually stopped a medication and treated it holistically with aloe and some other things.) I find drinking my nutrients is so much easier on my tummy. Anyway, I was really enjoying what was happening to my body. You know that Fibromyalgia and the other diseases that we have steal nutrients from our bodies and if we don't replace them we will only get worse. This has been confirmed by Dr. Ginerva Lipkin. God made our bodies to be beautiful and marvelous machines. When we give them the right foods, they can function at top rate. However, in today's world, our food isn't what it was 100 years ago and we need to supplement it with top quality nutrients especially if we are ill. 

Now, I keep the Limu in the frig because it tastes better chilled, it tastes like mango juice with a bit of a twang to it. I love it. At the end of the first month, I noticed that my IBS seemed to have gone bye bye. I have had it all my life! I told Bob and he said 'what is the change?' I said, 'the only difference I've made is the Limu' Now again, I am not making a medical claim here, all I am saying is that my body, being given the proper nutrition is acting like God intended.

A quiet Christmas came and went and before we knew it, it was the was the New Year. I would start working on the show after the new year when I got the microphone.

Anger in the Chronic Pain Community

There is a lot of anger in the Chronic Pain world right now. It is showing on the support group in a lot of ways!

Anger at the government for reducing the amount of opioid production. Anger at the Doctors for decreasing the number of opioids you are allowed to take or stopping your opioids completely, some of them cold turkey. Anger at the pharmacy, because they are only filling your prescription a week at a time, even if you have a 30-day script and then treating you like you are an addict in the process. Some Doctors are making you bring in your bottle and are counting your pills before they will renew your prescriptions and some pharmacies are doing the same.

The government is raiding Doctors’ offices and finding stashes of drugs they aren’t supposed to have, making it more difficult for the Doctors who are doing things right. This is causing Doctors to be fearful of prescribing opioids. The government is watching. Some Doctors are not only losing their licenses to prescribing opioids, but their practices as well. They are scared and angry too.

The government is also limiting the opioids that the pharmacies can dole out to patients. They are also being watched. Do you think they want their long-time patients in pain? I doubt it.

Then there is anger at the news, because every time you turn it on there is another story about the opioid epidemic and you think they are talking specifically about you, but you are wrong. And so are they! The government got the cart before the horse on this one. I hope someone is listening.

I live in a small town and every week there is another opioid death in town. 35 miles away is a larger town and there are usually 2-3 opioid deaths a week in it. Then there is the violence. It is increasing, all in the name of drugs. The drugs that we have, have nothing to do with this, but we are being labeled as drug addicts, and it isn’t fair. Still, there isn’t anything we can do about it just the same.

Now, this show is not a political show. This show is about Chronic pain and although opioids do not help Fibromyalgia by itself, very few of us have just Fibromyalgia, right? I would say that 99% of us have another, if not more than 1 chronic pain disease. For myself, I have RSD/CRPS which is the worst pain known to man and I know there are many of you who have that too! If the doctors cannot get that under control, the ONLY way to maintain any kind of life is with opioids. I for one, couldn’t have survived without them and my faith, at that time! Then, there are people with scoliosis, degenerative disc disease (raising my hand), rheumatoid arthritis, osteoarthritis, failed back surgery, several herniated discs, spurs on their spines, broken backs that didn’t heal properly, broken hips that didn’t heal properly or are still healing after years of having been broken (raising my hand), phantom limb syndrome, the list continues. Personally, I have several chronic pain issues.

Did the government even think about the Chronic Pain patient before they started this campaign on opioids? It doesn’t seem like it. Hopefully, the US Pain Foundation will develop the 2 projects to start addressing how to treat ’substance abuse disorder’ and accelerating the development of non-addictive pain therapies that they met about in October. The plan was to have Common Fund Projects in place by next month, but it was to be set up on a grant basis and the Office of Pain Policy and Pain Consortium has of yet never received a grant. When asked about that, Dr. Francis Collins, the NIH director said, ‘chronic pain is an important topic, especially at this time and it was being given very serious consideration.’ We will see won’t we. We cannot be silent!

The problem isn’t us. The problem is the illegal drugs on the streets and the families going to the streets to get them because they break their legs, or such, don’t get off the drugs, and end up buying drugs off the streets. The problem is the government allowing pharmaceutical companies to legally develop synthetic heroin drugs in the first place and the doctors handing them out like candy while getting kickbacks. What they should have been doing instead was creating non-addicting pain medications in the beginning, years ago, so that the Chronic Pain Patients could actually survive and maybe even do more than that.

So now, we the Chronic Pain Patient are being punished because the government is cracking down on the wrong population. Okay, with that being said out loud for all of us. We have to stand up for ourselves. Write to all of your representatives in the house and senate in your State and at the Federal level and tell them what they have done to you and explain that they have just caused suicide levels to rise and that it all lays in their hands because of their votes. Also, let them know that the problem doesn’t lie with the Chronic Pain Patients who feel like they are being punished by the way they are being treated by their Drs and pharmacies.

There is a lack of education and they need to be addressing the dangerous drugs on the streets.

So, now with all of that said, we have to turn back to ourselves because it has always been dependent upon us to do what we need to get things right. No one believed in our symptoms for, sometimes 4-5 years, sometimes for up to 8 doctors. Sometimes, they give us such dangerous drugs, but they don’t tell us what they can do to us and we don’t find out about it unless we have an adverse reaction, are in a support group where we hear the truth or we die and then authorities blame it on the opioid instead of the real reason.

Most times, for chronic pain patients, if someone dies, it isn’t the opioid, although that is what is blamed, it isn’t even the other nasty medications they prescribe for us. No, sometimes, it is our hearts because it has put up with such unimaginable pain for so long, it just gives out. Autopsies are just now finding these truths.

Still opioids are getting the blame and we are suffering for it.

So, although the anger is warranted. We need to handle ourselves in a mature and adult manner. When dealing with people, either online or in public, there is such a thing called civility in this world. All the rules of kindness to others have NOT been thrown out the window, even if we are in pain and people treat us rudely. We can show the world that we are better than that, bigger than that. We are Fibro Fighters and we will win, even if we have to do it by ourselves!

Yes, the government has failed us, the medical community has failed us again and again. Okay, now with all that said, yes, our anger is warranted, but it is time for it to stop NOW.

However, there is one thing left, and this will never fail because we still have each other! We will always try to help each other to lean on, one way or the other.

The first thing we have to do, is throw our fear aside and be open to try new things. The government moves slowly to change and you are not going to change your Doctor’s mind or the pharmacies way of treating you. Be open to try new things before your Dr cuts your opioids completely to see what you can do to help yourself.

So many of you are already saying, ‘if they take my meds away that will be the end of me.’ You need to STOP thinking that way! Truly! You are setting yourself up for failure! The negativity in that statement is just heading you down a dead-end road! The very first thing you need to do, is get into a Psychologist to help you with the fear, anxiety and anger. Let this person help open you to trying new things. There are free clinics, if you cannot afford a Psychologist. Try one.

There are medications that help with things like muscle spasms and such, there are also exercises you can learn at home to help. Also with that too is superior nutrition that replaces the nutrients that are stolen from our bodies daily from Fibro and our other diseases, plus vitamins like Vitamin D3, Magnesium Glycinate which is especially for Fibromyalgia and Calcium. Vitamin C for your immune system. Have your Dr., yes, they are still necessary, do blood tests to see where your levels are.

Did you know drinking unsweetened cherry juice might help Fibromyalgia pain? Did you know that going on a Gluten Free Diet might help Fibromyalgia pain? Did you know if you go on the Fodmap Diet using the Stanford site for it, that not only might it help your Fibro, but it might help your gut too? Did you know if you stop drinking pop/soda whether it is diet or not, that it will help your Fibromyalgia pain? Did you know if you stop drinking anything with caffeine it will help your Fibromyalgia? Did you know if you stop eating chocolate, lower your sugar intake and lower your carbohydrates you might help your Fibromyalgia and lower your chances of developing Diabetes Type 2. What you eat definitely affects your Fibromyalgia.

Stretching of your muscles, without overdoing it, can help with muscle cramping and exercises at home can help with muscles to stop atrophying. On the support group, Your Fibromyalgia, I have some videos showing the home exercises I was taught to do.

All, these little things I have been taught, I have shared with you along the way. Plus, both on the Support Group and on deblundquist.com there are articles to help you with other ways to take care of yourself.

Sometimes, pain and anxiety are simply mind over matter. Now okay, don’t get mad about me saying that. What I’m talking about are learning coping skills that really work. That takes time to develop. I can pop into a coping skill into 10 seconds, but don’t think I learned how to do that in 6 months! My mother started teaching me how to do that when I was 10 and I couldn’t sleep at night. Oh yea, I started early. I still do these today! A good psychologist can teach you these.

The same with learning relaxation skills. The physical therapists and massage therapist will tell me to relax and I’ll say okay. I’ll say okay. I’ll take a really deep breath and by the time I let it out, I’m completely relaxed, everywhere. They are always shocked and ask how I do that. They always say they have never seen anyone be able to do it like I do. Well, my first psychologist was great! She is the one that taught me that. She taught me in one session. By the end of it, I was sound asleep. She couldn’t believe I learned so fast.

Then, there is biofeedback that a Psychologist can teach you. You have to learn to listen to your body. Listen to it, act accordingly, but you have got to move or you will only deteriorate and your pain will only increase. This is entirely up to you!

When you get angry because your body is doing things that you wish it would stop or all the anger we were just talking about, you need to put your anger in a box and put a lid on it. Your anger only makes your adrenal glands more stressed (we talked about this before) and the more stressed the adrenal glands are, the sicker you will feel.

When I worked at Green Giant Mushroom Farm, part of my history you don't know about, I had a picker help me through my divorce. He always knew what was going to happen just before it did and told me what to do to protect myself and my son. Anyway, right before this happened, I had had a very upsetting meeting with someone I should have been able to trust. I had come back to work, I think more upset then I can ever remember feeling and I had absolutely no one I could talk to. I still had my coat, hat, and mittens on and I was sitting at my desk typing on an ancient typewriter with no paper in it. I was smashing the keys very hard. Tears were flowing down my face. I wouldn't talk to any of my supervisors, I only had 19 (lol), I wouldn't talk to anyone. So, someone went and got one of the pickers, PeeWee, a nickname. He came in, grabbed the biggest and ugliest yellow ashtray you ever saw and put it next to me on my desk. Then, he took a 5-gallon plastic tub and turned it upside down and sat on it right in front of me. He started talking to me. He knew I was getting a divorce and so he figured I was upset about that. That wasn't it, well not completely. He just kept at me and the more he did, the madder and more upset I got. He kept saying 'throw the ashtray, throw the ashtray.' Finally, he got me so upset, I threw the ashtray at his head and missed by an inch. I burst into tears and everything burst out. I told him the whole story.

Well, you take your anger, get a box, get something that you don't care about and you break it in that box and shut that lid. You leave that anger in that box and start thinking about positive things.

Another thing you can do is, get a pillow and bury your face in it. Then scream and scream into that pillow for all you are worth. Scream out all your frustrations and all your anger into that pillow. Then when you are done, put the pillow down and wash your face with a cool face.

You still have a brain and a heart and courage! This might not be the ‘Wizard of Oz’ and I am certainly not a ‘Wizard!’ But you can get past this!!! Anger doesn't do you any good.

You have to get past the anger to be able to move forward with your life. Anger is going to drive everyone in your life away and leave you completely alone. Is that what you really want?

Yes, it is frightening to think about getting off of opioids. I have had to do it 3 times. The first time was when the Dr put my RSD/CRPS to put to sleep after 4.5 years of excruciating pain. We weaned me off of high levels of Oxycodone and Hydrocodone. It took me several months. I hated the shaky feeling and later I discovered that if I had felt shaky, I was pushing it too fast and could have had a heart attack. After 4.5 years of being on it, I was afraid I would be addicted, but I was dependent, so that I surely didn’t want any Advil or even Tylenol after that.

Then, I broke my foot. I was back on Hydrocodone for 16 weeks. I didn’t want to be! I really didn’t want to be, but I couldn’t handle the pain. I slowly worked myself off of that, but I didn’t have to worry about it. I wasn’t on it that long.

When I broke my hip, in 2 places, I was on Hydrocodone for a long time, I think 8 months. I was afraid to go off that because I was still in pain, but I went off of it anyway because I was afraid to be on it longer. You see there are ways to handle your pain and I had learned to do it.

My RSD/CRPS has come back now and again and I’ve had to use Hydrocodone for that until I could get another block, until this last time, when I used my oils and of course, the Limu.

So now, when the RSD/CRPS, I don’t have to use pain meds until I get a block. I have my oils, Limu, my coping skills, biofeedback, relaxation, my happy place, my sleeves, and I can handle it. Not only can I handle it, not only can I survive, but I am thriving and so can you. You just have to take that first brave step without fear and anger.

The Box

 Written and copyrighted by Deb Lundquist, 3/2000

 Life is ever changing and yet it always stays the same.

We will evolve with each event and reinvent life's game.

We place ourselves within guidelines in which we live and stay

Working and playing as we expect, our lives, they never stray.

We live within a box with tall sides that we have created.

As long as we stay inside, our potential is ill-fated.

So, should we climb up to the top and see what is outside,

Or safely stay within our box where we can live and hide?

This question we all will answer as we mature and grow

After we are old and the box shuts tight, then we will finally know

If we should have taken a peek when we still had the chance

To see if a new direction would have helped our life perchance

There is still time to be brave, to stretch real high and look

And redefine how we will live, take life's coat off its hook.

Go out and knock down those walls that created our own box.

Destroy the chains, uproot the fence and throw away the locks.

Look past our world where we have become compartmentalized

And reach beyond our hopes and dreams that we have realized.

Spread out our wings and our minds, and reach to the sky and fly.

When time is past and all is done, we'll know the reason why.

For me that means the disability that no one else can see.

I've set my limits, built my box and relegated me

To an existence so defined I do not wander far.

Being scared, I forgot to stretch and reach for my own star.

But now it has been brought to notice, I am misdefined.

My existence as it is now, is quite plainly too refined.

I must experiment and stretch beyond my safety net

And touch the things I fear the most and see where I might get.

Yes, there will be things in life I will not be able to do,

But there are chores that lay dormant I truly need to pursue.

Until I try I will not know what can or cannot be done.

I'm more then a patient. I'm a wife, have a daughter and a son.

I'm a person with a mind, a heart, a purpose to fulfill.

I'll not let my disability destroy and plunder at will

Or make me useless in this world for I am still viable

Working with others and learning how to become more pliable.

Helping those new to this disease, and help their box destroy,

Tears down my walls, my fears and gives hope and true joy.

Even though I have RSD, blessings I'm still receiving.

With these maybe in some small part I can help others grieving.

The world is hard, but it will win only what we allow.

We must stand proud and with our strength we will win somehow.

But only if we escape the box which has become our jail.

We can succeed! There is hope! In this we will prevail!

(This poem was written as I tried to overcome my fear of driving and my fear of large vehicles on the road. This fear reared it's big, ugly head after my accident that brought on the RSD. It took a while to own up to this fear and as my husband and I drove to the doctor I wrote this poem. Amazingly, in counseling that day, the doctor told me I had to destroy my box. I thought it was interesting that this poem was written before our session. I have since learned to drive again without fear and semis don't even frighten me any longer. I can even drive downtown Chicago! So, see, there is hope! Little steps can begin tearing down very large walls indeed.)

May you have pain free days, with smiles and love.

Deb Lundquist

Two Ways I Handle My Pain

How I Handle My Pain

By Deb Lundquist

Nov 12, 2017

Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome is the worst pain known to man according to the McGill Pain Index. It is even more painful than an amputation if you can imagine that! The pain is even worse than Fibromyalgia. I had to use opioids like a lot of you do now. There was a scare even then that they were going to start cutting opioids. I was quite afraid then, just as you are now.

After several years of Doctor hunting, as it usually goes, I finally found a Doctor who understood and said he could help. Boy he did and after 4 radio-frequencies, he put my RSD/CRPS2, which means I have full-body RSD/CRPS, to sleep for 7 heavenly years.

You see, when I was in such pain with the RSD/CRPS, I pleaded with God to please come have tea with me and bring His bag of tricks and exchange the RSD/CRPS pain with something that wouldn’t kill me. Well, we met in my dreams and He brought His bag and He gave me the Fibromyalgia. When I asked Him what I was supposed to do with it, He said ‘EDUCATE!’

However, first, I had to find out what Fibromyalgia was and then I had to figure out how to handle it. I couldn’t take any of the medications the Doctors wanted me to take and so I had to figure out another way to take care of the pain and other symptoms I was experiencing, including complex chronic migraines that would last for months!

After several Doctors gave me horrifying drugs and shots that did nothing, my neck ended up completely frozen in one position, straight forward. On the same day, the Doctor and the physical therapist dismissed me with no help and I was on medications I should not have been on unless I was in the surgical room being operated on!

Fortunately for me, I was headed to our daughter’s place in WA State the next day and had already made an appointment with her neurologist and a physical therapist and massage therapist out there. I was a walking zombie and told the Flight Assistant what was going on so she could make sure I got to the right flights and got to where I needed to be.

God was watching over me that day. A woman with Epilepsy sat next to me while I waited for my connecting flight. She had a Support Dog with her and he had been laying on the floor by her feet. All of the sudden, he sat up, put his foot on my knee and put his head on his foot. His owner looked at me as I said ‘oh aren’t you sweet’ and petted his head. He was watching my face intently. His owner said to me, ‘are you a Diabetic?’ I said, ‘well actually, yes I am. Why do you ask?’ She said, ‘my dog is telling me that you are about to crash.’ I looked at the dog and then at her, ‘Really?’ She said, ‘Yes, and he is very worried. We need to get you a smoothie, now!’ And so, we did with the dog walking right next to me watching every move I made! Wow, I want a dog like that! My Zacky was like that, but he died a long time ago!

Anyway, when we got to my daughter’s, I was in a wheelchair, of course, and she was horrified by how I looked. ‘Mom, are you okay, you look awful!’ ‘Well, how would you feel if you had a migraine for over 3 months, was on Versid and (some other drug I don’t remember because of the Versid) and I had a smoothie with milk.’ She said, ‘oh no, Mom, you are going to get sick!’ ‘Yep!’

The next day, we went to her neurologist. I took the meds I was given. After swearing like a well-seasoned sailor, he said do you know what these are? I, of course said yes. He violently threw them away! I said, ‘thank you!’ Now can you help me? He said I will try. He gave me Imitrex shots, but they did nothing.

I went to physical therapy and massage therapy. They helped, a lot! I did my exercises faithfully! I could still not move my head, but I tried to do my exercises. I went to therapy and massage every other day. Massage was 2 hours. The first time I moved my neck, I screamed and scared Aimee to death. She came running. ‘Aimee look!’ I did my exercise. ‘I don’t see anything Mom’ I did my exercise again. ‘Mom I think I see a little movement!’ I was so elated! The exercises and massage were working! My neck was loosening! My migraine was still there, but my neck was loosening.

My daughter had her baby, the reason I was out there. Two weeks later, my husband came out to meet his new grandson, our Robbie. He decided we needed to get out of the apartment and as we were getting into the van, a woman ran out of her apartment and came to me in a frenzy. ‘You have a migraine, don’t you?’ when I responded yes, she said ‘I can help you if you will let me’ and off she ran. When she returned with phone in hand, she said, ‘can I put these on you?’ Well I had no idea what ‘these’ were but I said yes. She put ‘these’ on my forehead, temples, and the back of my neck and then had me smell them. Ten minutes later, my 3 months plus migraine was gone and my entire body was relaxed. Whatever ‘these’ were I wanted as much as I could get!

When we got back, she came racing out, took one look at me and did a little dance. ‘Your migraine is gone!’ I said, ‘yes and whatever those were I want them’ Well, as it turns out, they were doTERRA essential oils, Frankincense as a base, lavender for relaxation, and peppermint for pain. Now I also will use PastTense and Deep Blue and sometimes Whisper because it also can help your body with your Adrenal Glands. Now here is how doTERRA works. They are essential oils and come from 100% pure plants parts that have never been touched by chemicals at any part of their development from seedlings to oil. They are not medication. They do not cure or replace any medication that you are taking. You can use them on your skin, aromatically, or internally. They work with your body and help your body do what God intended it to do. Heal itself. They can break through the blood brain barrier and get into the blood stream and actually get into the cell itself thereby helping the body fight off virus’, bacteria, and other pathogens that invade our bodies including but not limited to MRSA. doTERRA is the purest, most potent, therapeutic grade, essential oil on the market today!

I used it for the first 5 years for everything! I still had pain. I used it for migraines and still do. I use it if I feel like I might be getting sick and still do, although I very rarely feel that way because I take On Guard. I use it for depression and if I have break-through pain, which is rare any more. I use it for most things. I even use it to make my own bath salts.

Then, a year ago I was introduced to a liquid nutritional product. Again, it is all natural and gets its nutrients from the pure uncontaminated sea waters of Tonga. It comes from a natural brown marine vegetable seaweed that includes fucoidan. Fucoidan is a super nutrient that has amazing properties. There have been over 1,500 peer review papers just on Fucoidan including papers from Harvard, UCLA, and NIH, pubmed.gov. Well, this Fucoidan is in Limu moui and I was given a bottle of this a year ago when I went to a conference. I was asked to try it and see what results I got. I’m thinking this is a super nutrient that I can drink, maybe it will be easier on my tummy which was giving me a lot of trouble!  The first week, I started drinking 2 oz twice a day, I did only have 1 bottle. It tasted like mango juice with a little twang. Now as with doTERRA, Limu moui is not a medical product! It does not cure anything. It is not a medication, nor is it meant to replace any medication. However, with that said, the body is a wonderful machine of nature that God created and when given the proper nutrition, it can do amazing things. Fibromyalgia steals nutrients from us daily and if we do not replace them daily we will only get worse. Proper nutrition with a top quality product is a must! I was taking one, but it was bothering my stomach to the point that I wasn't absorbing the nutrients correctly. Now I started drinking Limu and things began to change. Not because of medical qualities of the product. No! But because my body was finally able to absorb the nutrients it so badly needed.

The first week I had a gentle cleanse. In other words. The potty and I renewed our acquaintance quite well. The next week, I noticed my IBS slowly went away as long as I drink the Limu moui. If I stop drinking it, hello IBS. I bought a case of the LIMU moui and became a promoter. I was liking what was happening and the idea that the Limu moui was replacing the nutrients the Fibro and the RSD were stealing from my body on a daily basis. I was already seeing a difference in my nails and skin! My skin wasn’t as dry and my nails were smoothing out and I had only been consuming this for two weeks and I was only drinking 2 oz twice a day!

When I got my order, I increased how much I was drinking to 4 oz twice a day and I also started drinking Lean Burn to stop my cravings. It also has Fucoidan in it. When I doubled what I was drinking, it was amazing what I was watching happening to my body! As I lost weight, I was not getting flabby. Is that not exciting? Then, I noticed that the pain in my back started to disappear? Umm…where did it go? I was sleeping? My energy was increasing? What? Then at the end of two months, I realized that I felt good. Say what? Then my husband said to me in exactly these words, ‘Welcome home! I’m so glad you are back! I have missed you so much? You have been gone for so long!’ I got tears in my eyes and said, ‘My brain is totally clear!’ He said, ‘Yes, I know, I can see it in your eyes and your pain is gone!’

18 years after my accident, I finally found a holistic way to take care of myself! It is allowing me to exercise, get out of the house. I now laugh, not just giggle, but laugh so hard my gut hurts and I can't stop laughing. You know the kind of laughter that is contagious. I feel wonderful. I’ve lost 30#! My blood work is so normal that the doctor doesn’t want to see me for 6 months! The rheumatologist doesn’t need to see me ever again! I can even control my RSD pain without taking any opioids before I get my next block. Also, I am not getting break-through pain, diabetic pain in feet, and my migraines are almost nonexistent! 

Had you asked me 5 years ago, before these products when I was bedridden with complex chronic migraines, fibromyalgia pain, and all that goes with it and the drs had given up on me, that I would be where I am today, I would tell you, you were crazy and I would laugh at you.  But I tell here and now I am so glad I gave these products a try.

This might be your solution like is has been mine.

I can not promise or guarantee that anyone will have the same results as I have with both products. Both companies do have 30-day money back policies, so people can try the products for themselves and/or their families. In my opinion, both companies are great companies and do projects that help those in need. Both companies support their customers who are their #1 concerns!

And for me, you can’t do any better for your health, than these two companies, so if you are interested in any of these, call me at 815-214-9443 and I will help you to get started right away.

Fibromyalgia Stages of Mourning

When you develop a chronic illness, you go through a period of mourning. I know that sounds a bit melodramatic, but it is a truth. 


The first stage is Denial:

This isn't happening. There isn't happening to me. This happens to other people. Besides, if the Drs. can't find anything, there must not be anything wrong. I mean look at me. Looking at myself in the mirror, even I don't see anything wrong except that I look tired.


The second stage is Anger:

Anger at God or a Higher Being for allowing this to happen to you. Anger at a friend who was with you when it happened, if you were in an accident. You got it, they didn't, especially if they then deserted you later. 'How dare you let this happen!'


The third stage is Bargaining:

Mine was with God when I was bargaining about my RSD. 'Let's meet for tea and bring your bag of tricks. Pick out something else that isn't going to kill me and just put my RSD to sleep.' Well, we did. Sort of. He put the RSD to sleep, although I still have to go and get blocks once and awhile. His new disease was Fibromyalgia. I threw my hands up in the air and said 'God, I do not appreciate your sense of humor! What am I supposed to do with this?' I heard loud and clear 'EDUCATE!' I was in the car and it echoed and echoed. So that became my purpose!


The fourth stage is Depression:

Experiencing listlessness or exhaustion combined with feelings of helplessness, guilt and lack of interest in life. “I might as well give up.” I know we have all felt this, because not only do we feel it as we go through the stages of mourning, but we feel it with Fibromyalgia. Can we say double whammy! Seeing a Psychologist or Counselor at this point is very important! Then finally,


The fifth stage is Acceptance:

Facing the loss and moving on, returning to setting goals in your life and focusing your energy more positively. “I’m ready to deal with this now.” With some of us with Fibromyalgia, it is extremely difficult to reach this point because we refuse to let go of the past. We refuse to stop saying 'I want my life back.'


Well, the first thing you have to do, is release your past so that you can move forward. You also need to start learning to live in the here and now and planning for the future. You can look at the past, but with happy thoughts, not with regret and depression.


Your Fibromyalgia, LLC support group has members going through various stages of this mourning process. If you would like to join the support group. Click on this link https://business.facebook.com/yourfibromyalgia/, message me with your email and I will add you to our database.

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