Hi everyone. I am going to write something that some people are not going to like, but it is the truth and only the truth. This may sound like a lecture, but it is just how I write. It is not a lecture, but is how to take care of yourself and a way to improve your Fibromyalgia, but only if you follow the steps laid out for you.
This is how you treat Fibromyalgia. No I am not a Doctor, nor am I in the medical field in any way, but for 18 plus years and as a Researcher in my past life as my husband has been a research for over 30 years, and as an author, I feel that I have figured out what to do.
First, don't count on your Doctors to fix your Fibromyalgia or all of your diseases. Why? Well in the case of Fibromyalgia, they don't know what it is, so how do they know how to treat it? Between you and me and the listening ears of the internet, I think Fibromyalgia is a combination of several diseases, plus Celiac Disease, nutrient non absorption, plus nutrient deficiency which is easily fixed. All 3, Celiac Disease, malnutrition and nutrient non absorption are all easily fixed. The others can also be somewhat fixed or helped by adding nutrition to your body. All of our nutrients are stolen daily from our diseases and if they are not replaced daily, we will only get worse. Not one vitamin at a time, but all the nutrients because if you do one vitamin at a time you are not getting the micros and they are just as important.
You don't want to hear this, but you must, no matter how much it hurts, you have to move, not just move, you have to do light exercises, stretches. If not, you will be a cripple. Is that the life you choose for yourself? Is It? Really? Because this is your choice!! Yes, it is going to hurt! Tough. Do it anyway. It is going to hurt worse if you don't. The more you sit or lay down, the more you are going to hurt. So get up and move. You can hate me for saying it, but your Dr. says it too. They may not know what they are doing, but in this, they are right. If you don't move, you will develop scars within your muscles and those are hard and painful to break up once they develop. I know. I was bed bound for 4.5 years and I had to break those up. So get up off your bed, couch or chair and start moving.
You have to change your attitude. You cannot for the rest of your life say, oh poor pitiful me, I live in pain all my live, I am tired all the time, I can't think therefore I can't do anything, I have brain fog so I can't do anything. I have no stamina so I can't do anything. Wrong! First, you have to start thinking positive. Are you going to let this disease completely ruin your life or are you going to stand up and pull up your boot straps and figure out how to live with it. I for one decided I was going to learn how to live with it. When I finally walked out of my bedroom and saw my house, it was like the first time I had seen my house. At that point, I decided it was time I learned how to live again because I had a whole house I wasn't even using and it was a big house. That is when I started physical therapy and massage therapy.
You have a decision to make. Am I going to whine and complain for the rest of my life. Am I going to blame others for the rest of my life for being alone. Did they leave me because they didn't believe in Fibromyalgia or did they leave me because I whined and complained all the time about Fibromyalgia and didn't care to talk about anything else but Fibromyalgia? You need to do some real soul searching and figure out are you a constant complainer who cannot move forward? Are you a constant whiner who cannot find interest in anyone else's life? Be honest with yourself. Is that why no one wants to be around you? Do you talk to the people you love about their lives? Do you ask them how their day went? Do you ask them questions about their lives? Or as soon as they walk in the door do you start demanding their attention and start demanding help with no thought to what their needs might be at that moment when they walk in the door? Have you tried to contact your family without talking about your Fibromyalgia? Or is that absolutely all you can think and talk about? If so, then you really do have a problem because you really are shoving people away. Most people are not going to stick around if that is all you are going to talk about and people are going to leave if all you do is whine and complain and blame everyone else for your problems.
You have a decision to make. If you want to get better, you cannot count on your Doctor to do it for you. Most of the medications they are going to give you can be beneficial, they are also toxic. Some of those medications can also do damage to your body which is why before taking them you must do research on them so that you know what all the side effects are and if you take them how long you should take them before they become a problem.
Pain medications can actually create rebound pain if you are on them long enough. Advil or its generics are bad for your liver, so you need to be aware of that. Tylenol and its generics are bad for your kidneys and so you need to be aware of that.
You have to be your own Advocate and YOU have to decide how YOU are going to take care of yourself. First, you do need to get a diagnosis and usually a Rheumatologist is the one who will do it. However, you do need the battery of tests to make sure everything else is ruled out. But like I said, medications can only go so far. The rest is up to you. If you think medications are going to fix you, you are going to not only be disappointed in your Dr. you are going to be angry. It is not the Drs fault. It is your expectations. You do not have to always fill your Drs. prescriptions if you are uncomfortable with what he/she has prescribed. Talk it over with your Pharmacist.
Your Dr. is not a magician. Do not expect magic from him. Plus his hands are now tied as far as pain medications are concerned, so getting mad at him is fruitless and only makes your pain worse. This is something you have to get over.
You may not be able to do all of these, but do as many as you can.
1. Start moving, yoga, this isn't if you want to. This is a MUST.
2. Get massages, there are several kinds, make sure they are using essential oils for pain and so they can touch you. If they are massaging you too hard, tell them. It is going to hurt afterwards, but that is natural. Even healthy people feel that. Your body is not used to that. Toughen up and continue to go back until the pain stops. Make sure the massage therapist knows that the last massage made you sore for how many days.
3. learn how to meditate, go to your happy place
5. essential oils, you can contact me or someone else
6. herbs, I don't sell these, but there are others that do
7. fucoidan, you can contact me about this
8. change your diet, this is huge! Fodmap Diet
9. stop drinking soda/pop
10. quit drinking or using anything with caffeine!
11. stop using or drinking anything with artificial sweetners
12. lower your sugar and carbohydrate intake
13. drink more water, take your weight divide it in half and drink that in ounces to get rid of toxins
14. stop eating prepared foods
15. Go Gluten Free
16. No more Fast Food
17. No more Nightshade Foods, potatoes, tomatoes, etc
18. get adequate REM sleep
19. get away from negative abuse people, situations
20. reduce your stress.
21. stop smoking
22. stop drinking alcohol
23. start being active in your community
These are musts if you want to get better. You have to get out of your self pity, your always thinking about your pain. You need to start thinking about all the positive things that you used to be able to do and start thinking about how you could start implementing some of those things at home. Because you aren't dead. You are still a viable person who still has a purpose in life. You just have to choose if you want to live a life with purpose or if you want to stay in your self-pitying world. You are an unique person and there is no one else like you in the world. You have skills no one else has! They may be rusty right now, but they are still there. Look at me! I came from being bedridden, crippled, in a wheelchair, pain a 10+, crying all the time. Thinking only of my pain and why no one wanted to be with me. Now I run this support group, I have a website, I sell 2 products which have gotten me out of bed with no pain and no symptoms and I have an online radio program on the BBM Global Network and TuneIn Radio and in January iTunes. I never had these skills or experiences before these diseases. Look at me now. I decided to live. I am out of a wheel chair and don't even use a cane! Now, how about you. Which do you choose? To live a life or to wallow in self pity? You are all beautiful/handsome people, you are all important, you are all loving individuals and I am not trying to lecture you although it may sound like it. I am trying to help you. It is my calling, my purpose since I figured it out. When I was diagnosed with Fibro God told me to EDUCATE. And I have with articles and with things I have written, this is the first time, I have actually given people a swift kick in the butt, but I know you can do this. Too many are depending on miracles Drs. can't give and then are angry and discouraged. I know you have it in you to fight. I know you have the strength to continue! I know you are winners and I love you all to the moon and back. - Deb
Two Ways I Handle My Pain